a Record control number 51517073

a ISSN 0931-041X

a Original cataloging agency NEU GrandLibrary

a Language code of text/sound track or separate title eng

a Classification number WJ 368

b Item number .Q3 2010

a Personal name Buyan, Necla.

h Medium Electronic Document

a Title Quality of life in children with chronic kidney disease (with child and parent assessments)

c Statement of responsibility, etc Mehmet Turkmen, Salih Kavukçu et all.

c Date of publication, distribution, etc 2010.

a Summary, etc Herein the results of a multicenter study from the Turkish Pediatric Kidney Transplantation Study Group are reported. The aims of this study were to compare the quality of life (QoL) scores of Turkish children who are dialysis patients (DP), renal transplant recipients (TR), and age-matched healthy controls and to compare child-self and parent-proxy scores. The Turkish versions of the Kinder Lebensqualität Fragebogen (KINDL®) questionnaires were used as a QoL measure. The study group consisted of 211 children and adolescents with chronic kidney disease (CKD) (139 TR and 72 DP aged between 4–18 years; 13.7 ± 3.5 years) from 11 university hospitals, 129 parents of these patients, 232 age-matched healthy children and adolescents (aged between 4–18 years; 13.1±3.5 years) and 156 of their parents. Patients with CKD had lower scores in all subscales except for physical well-being than those in the control group. TR had higher scores in physical well-being, self-esteem, friends’ subscales, and total scores than DP. Child-self scores were lower than parent-proxy scores, especially in CKD, DP, and control groups. Concordance between parent-proxy and child-self reports in the TR, DP, CKD, and control groups was only moderate for the majority of subscales ( r = 0.41–0.61). It was concluded that parent-proxy scores on the QoL were not equivalent to child-self scores and that evaluating both children’s and parents’ perspectives were important. Additionally, psychosocial counseling is crucial not only for patients with CKD but also for their parents. [ABSTRACT FROM AUTHOR]

a Topical term or geographic name as entry element Kidney Transplantation

a Topical term or geographic name as entry element Near East University Article

a Topical term or geographic name as entry element Yakın Doğu Üniversitesi Makale

a Topical term or geographic name as entry element Chronic kidney failure in children

a Main entry heading Pediatric Nephrology.

g Relationship information AUG 2010, Vol. 25 Issue 8, p1487-1496. 10p. 6 Charts, 4 Graphs.

x International Standard Serial Number 0931041X

u Uniform Resource Identifier http://library.neu.edu.tr:2048/login?url=http://dx.doi.org/10.1007/s00467-010-1486-1